Malaysian Paediatric Paliative Care Reference Group

In the news

Malaysia Still Lacks Paediatric Palliative Care (The New Straits Times)

Palliative Care Less Than Satisfactory (The Malay Mail)

 

Text books 

  • Oxford Textbook of Palliative Care for Children by Ann Goldman, Richart Hain and Stephen Liben (2nd Edition)
  • Textbook of Interdisciplinary Pediatric Palliative Care by Joanne Wolfe, Pamela Hinds and Barbara Sourkes
  • Palliative Care for Infants, Children and Adolescents: A Practical Handbook. Edited by Brian S. Carter and Marcia Levetown
  • Neonatal Palliative Care for Nurses. Edited by Mancini, Alexandra, Price, Jayne, Kerr-Elliott, Tara © 2020

 

Guidebooks/Handbooks

 

Journal articles

  • Physician and Parent Perceptions of Prognosis and End-of-Life Experience in Children with Advanced Heart Disease. Balkin EM. Journal of Palliative Medicine 2015;18(4):318-323 (JPM 2015;18(4).pdf)
  • Who needs and continues to need paediatric palliative care? An evaluation ofutility and feasibility of the Paediatric Palliative Screening scale (PaPaS) (ChongPH et al. 2020 Who needs PPC)

 

Online

 

National Paediatric Policy and Strategy 2019-2030

Children’s Palliative Care in Africa

A practical guide to Palliative Care in paediatrics

Journey AUST

Difficult Conversations

JPM 2015

Handbook For Parents Facing EOL

Perinatal Palliative Care Framework

TFSL Standards Framework 2015