In the news
Malaysia Still Lacks Paediatric Palliative Care (The New Straits Times)
Palliative Care Less Than Satisfactory (The Malay Mail)
Text books
- Oxford Textbook of Palliative Care for Children by Ann Goldman, Richart Hain and Stephen Liben (2nd Edition)
- Textbook of Interdisciplinary Pediatric Palliative Care by Joanne Wolfe, Pamela Hinds and Barbara Sourkes
- Palliative Care for Infants, Children and Adolescents: A Practical Handbook. Edited by Brian S. Carter and Marcia Levetown
- Neonatal Palliative Care for Nurses. Edited by Mancini, Alexandra, Price, Jayne, Kerr-Elliott, Tara © 2020
Guidebooks/Handbooks
- Children’s Palliative Care in Africa (Justin Emery) (pdf “MPA PPC Africa”)
- Practical guide to palliative care in paediatrics. (Practical guide to PPC (Aust).pdf)
- JOURNEYS: Palliative care for children and teenagers. (Journeys Aust.pdf)
- Guide to difficult conversations with young adults. (difficult conversations.pdf)
- Caring Decisions: Handbook for parents facing end-of life decisions for their child (Handbook for parents facing EOL.pdf)
- Together for Short Lives: Standards Framework for Paediatric Palliative Care (2015) (TFSL Standards framework 2015.pdf)
- A Really practical handbook for children’s palliative care- Justin Amery (2016) (coming soon)
- Together for short lives: Perinatal palliative care framework (Perinatal palliative care framework.pdf)
Journal articles
- Physician and Parent Perceptions of Prognosis and End-of-Life Experience in Children with Advanced Heart Disease. Balkin EM. Journal of Palliative Medicine 2015;18(4):318-323 (JPM 2015;18(4).pdf)
- Who needs and continues to need paediatric palliative care? An evaluation ofutility and feasibility of the Paediatric Palliative Screening scale (PaPaS) (ChongPH et al. 2020 Who needs PPC)
Online
- Ehospice international children (http://www.ehospice.com/internationalchildrens/en-gb/home.aspx)
- International Children’s Palliative Care Network (http://www.icpcn.org)
National Paediatric Policy and Strategy 2019-2030
Children’s Palliative Care in Africa
A practical guide to Palliative Care in paediatrics
Handbook For Parents Facing EOL